The HIMSS15 Patient Engagement Symposium, one of 10 all-day pre-conference sessions, featured an impressive—and passionate—lineup of leaders representing government, providers, technology innovators, patients, and caregivers.
The central theme of the symposium, stressed throughout the day, was that patients need access to their clinical records to actively participate in their own care. But progress has been slow and there are still many roadblocks. Patients, particularly those with serious illnesses and complex care needs, are pushing hard for change, and in some cases, their physicians are working shoulder to shoulder with them. The rallying cry is #givememydamndata.
So why is it so hard for patients to get their data? And what is being done to fix it? Here we offer a close-up view of the state of patient engagement, with a recap of the symposium presentations and case studies from top leaders at the ONC, VA, Kaiser Permanente, Beth Israel Deaconess Medical Center, Relay Health, and others.
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